Public & Patient Involvement (PPI)
Our vision for PPI is to deliver: 'An active partnership between the public, researchers and others, to develop cancer research in Wales to improve their health and well being'.
We have developed an innovative framework in the following areas which will help implement PPI and assist in measuring outcomes:
· An overarching PPI strategy for the WCRC.
· PPI representation in governance structures, work programmes and individual trials and studies. PPI Standard Operating Procedures and guidance documents are available to all WCRC teams.
· A PPI group was established which was made up of Researchers, Researcher Partners and Professionals who are experts in this field. Their role is to steer the development of policy and practice and the production of documents to support the Themes.
· Provide training for both PPI representatives and researchers internally and via Health and Care Research Wales' training programme
· Publications and grant outputs with PPI support.
· Dissemination via PPI communication leaflets, conferences, posters & PPI presence on WCRC website.
· Engagement and the number of public engagement events supported.
It is important to know whether the inputs made by research partners have made a difference to a trial or study. Our proposed impact measurement tool lists areas of work where inputs are expected from research partners, we will pilot this tool kit within a number of research centres in the first instance.
Baseline measurement of PPI activity across all WCRC areas, have been undertaken using a scoping toolkit. The information gathered has been used to determine which actions will need to be taken so that our research can achieve the requirements and performance indicators set for PPI involvement.
If you would like further details about our progress please click here for our three year timeline.
Are you a member of the public and want to know more? Watch our film!
Members of our public and patient involvement team have worked with Cardiff University staff to produce a short film highlighting the benefits of public involvement in research.
The film ‘Why get involved in Research?’ is aimed at members of the public and firstly tackles the question ‘why research is important’. It provides several options of how people in Wales can use their voice to make a difference to health and social care research. Finally, it provides contact information on how members of the public can get involved in research in Wales.
We are always on the lookout for more research partners to join our team, if you or anyone you know would like to make a difference and get involved in research then please contact us at WCRC@Cardiff.ac.uk.
For more information about being involved in research, please visit the Health and Care Research Wales website. If you are a researcher interested in involving the public in your work, please click here to learn more about how Health and Care Research Wales can help you.